My Little Blog

Sending my thoughts out into cyberspace to keep my sanity.

Friday, January 27, 2006

Third Operation

Just heard that Hunter's third operation will be this summer. Probably he will have his catherization at the begining and operation towards the end of summer right around his third birthday. I guess it is good to have it done when he is younger and won't remember it and when he is healthy, but I was hoping he would be bigger. His Boston cardiologist assured me that a few pounds don't really matter at this point. Hunter was under ten pounds for his first two operations. I just am not ready. I don't think I'll ever be, but it is something that has to be done. How do you explain that to a two year old? How do you expain why Mommy and Daddy are taking you to a place where you will be poked and proded and hurt all for your own good?

Wednesday, January 25, 2006

Hunter and Weston

Weston is crawling on all fours now, and pullling up on everything, and falling on everything. He is starting to take a few steps while holding on to furniture. He babbles a lot and says mama, dada, baba, and a lot of other stuff I can't make heads or tails out of. He screams a very high pitched scream when he is happy. He loves standing up on the train table and destroying the tracks we so carefully laid out. He really is so beautiful with these big blue eyes and happy smile. He reminds me of a cherub. He can put objects in things and take them out quite well and likes the dino ball thingy and the bug jug. He doesn't get to watch TV much, but seems to like Elmo and anything with puppets like Sesame Street. He loves music and books.

Hunter is so smart. He knows all his capital letters and is pointing them out in magazines, books, on TV, ect. He can count up to twelve. But this is the most amazing thing: he knows how to use the mouse, click, and drag objects. He can play a computer game all by himself. He is going to be our little techno boy (just like his Daddy) he likes all the gizmos and gadgets. Forgot to mention at his check-up he weighed 25 pounds and grew and inch. His waist is still tiny and his pants are forever falling down. He refuses to wear socks and lately has even been taking off his clothes going "nakey" around the house until I can catch him and put some clothes on him. He now screams at the mention of potty so I decided to hold off on that for awhile. Hunter is never one to please someone else anyway. How am I ever going to get that kid trained? Hunter's new thing is Spongebob movies and Clifford books. I really don't like Spongebob and hope the phase will pass soon.

What else have we been up to......................

Last Monday, before the wind storm, my mother and A came and we brought the kids to a children's museum here. They all seemed to have fun. Hunter was a little shy, but liked the toddler slide and the trains. A liked everyting although he is 5 and some of the stuff seemed a little young for him. Weston like looking at the mirrors.

Saturday was beautiful here and we went to a park. Hunter had a blast. C chased him around and I took Weston on the swings. Weston loved the swings and laughed and laughed. Hunter went down all the slides even the big ones. It was so nice to be outside in winter.

Hunter's heart check-up

Hunter had his cardiology appointment Friday morning. It was okay. His oxygen was good and his heart function looked about the same although he thought his tricuspid valve was leaking a bit more. This is frightning to us because his valve was leaking so bad when he was two months old ,he had to have the Glenn (2nd surgery) early. Hopefully the Fontan (3rd surgery) will fix the leak although there is always the possiblility he will need a valve replacement. We do not want him to have that because it is an artificial valve and he will grow, the valve won't, requiring additional surgeries. But I won't get ahead of myself here. All we know for now is he is doing fine and we have to contact Boston Children's Hospital for an evaluation of when to have the third surgery. It may be sooner than later. Again I don't know yet.

His appointment was horrible anyway. I drove back from C's parents with the kids. C had left earlier for work. He met us there. Hunter didn't sleep for the car ride. He was overtired and fussy. The nurse tried to get an EKG and he started screaming and was inconsolable. He does not like the stickies they put on his chest and wanted his shirt back on. The doctor couldn't even listen with a stethascope. Finally we dressed him and took him for a walk int he stroller and then went back up for his appointment. The doctor got all his information including the echo under his shirt while he was sitting in the stroller. Hunter must have felt safer?? No EKG, but the echo is more important. We got home about 12:30pm from our 9:00am appointment.

Wind storm

Last Wednesday we got a huge wind storm here and the neighbor's tree fell also taking out the telephone pole. We lost power, phone, and cable and all the wires were in our front yard. It happened when Hunter's speech therapist was here and she had to back out over the wires to get out. We went to C's parent's house to stay for two nights. The boys did a lot better than I thought. It was thier first night sleeping away from home (except for the hospital). They slept fine and were well behaved. We also saved all our food as they have an extra refridgerator and freezer. It just so happened I went grocery shopping on Monday and we had a ton of food. All is fine now. It was nice seeing C's parents and brother and wife and thier kids. We did end up having a good time although I hated packing everything in such a rush. C's mom is very creative and made this little house out of a big cardboard box and strung Christmas lights in it. Hunter, Weston, and thier older cousin love it. They are all so cute.

Friday, January 06, 2006

Happy 2006

I'm always a little sad when Christmas is over, but in other ways I'm glad to get my house back to order. The presents were piling up and we were trying to convert the dining room into a playroom. It is still a work in progress. We did have a great Christmas. Weston's first. He seemed to like seeing all his relatives. He is so happy and good with everyone. Hunter loved Christmas this year and was very excited about all his presents. The big thing this year were toys with balls in them. He loved his ball popper and marble works castle for toddlers. He also got a wooden train set and loves that as well. Weston liked his leapfrog table and dino ball drop. Hunter and Weston really play with each other's toys so there wasn't much distinguishing over who's was who's.
We wen't to C's aunt's house for Christmas Eve. They always have the best food. C's grandparents were up from Florida so it was nice for them to meet Weston. We did a yankee swap this year and his aunt had a pinata for the kids. They were a little young (Except for G, but it will be a great tradition) We had a pinata many years at my grandmother's house as we were growing up.
Christmas morning we opened presents at our house then we went to my aunts to see my extended family then to my parents. Oh my God, the toys my parents bought the kids !!!! My mother is a really good shopper and finds good bargins too. The next day C's family came over to our house. So it was really like three days of Christmas for us.

Other than Christmas chat. Weston is now pulling up on everything and follows Hunter everywhere. He is waving bye and holding up his hands for up. Weston is also our big boy. He weighed 21 pounds and was 30 inches long at his last check up. Thank you so much E for coming with us. (My wonderful friend came and helped out with the kids at Weston's check-up). He has eight teeth now.

Hunter is talking up a storm. He can say the entire alphabet and numbers from 1-10. He is starting to point to letters in words he sees (newspaper, boxes, anything) and saying the letter. He is so cute, he was playing with a plane today and said something like this " 20, 11, 14, 6, 9, 8, 7, 2, ready, set, go" I think he was counting down for blast off. He is also drawing cats, fish, water along with his normal faces, railroad tracks, and suns.

Heard from another parent that her daughter with HLHS got PLE years after the Fontan operation. Evidently this happens in 10% of people who have a Fontan (doctors aren't sure why?) Great, another thing to worry about. Hunter's check-up is the 20th of this month. I will be a nervous wreck as it gets closer and closer.