My Little Blog

Sending my thoughts out into cyberspace to keep my sanity.

Tuesday, June 20, 2006

Cardiac Catherization

Hunter had his cardiac catherization on June 13th. It went as well as those things go. They had to balloon his aorta twice because he had some narrowing. They also put a coil in the VIMA to prevent unnecesary blood flow to the heart.

The day before, we had to bring him in for testing: EKG, chest x-ray, echo, blood work, etc. and to talk witht the doctors. It lasted all day. Huner started crying when the nurse put the hospital bracelet on. Actually he was okay considering. He calmed down after a bit. He was better than I though, but then again I brought A LOT of distractions.

The next day he was one of the first to go in the cath lab. He didn't want to take off his clothes and was crying at everything, but then the nurse gave him this medicine to calm him down (they give it to all the kids) and he was fine. He was probably as high as a kite, but at least he seemed happy. He had his Spongebob blankie and pillow and the nurse latter told me they sang the Spongebob theme song to him during the procedure. He was semi-conscious so no breathing tube. He was in there about 3 hours.

Then we sat with him in the recovery room. He woke up and the first thing he did was look at his IV and say "off". Luckily he was still heavily sedated and slept until about 6 that night. He was really cranky, but left the IV alone. He always wanted his shirt on and blankie over him. I guess they protected him from having anything done. He mostly just watched movies. I slept with him in the bed and C slept on the pull out chair although you are only supposed to have one parent in the room. The next day we could tell he was feeling better and he even went in the playroom and made a butterfly craft. We were discharged about noon. Before we could go the nurse had to take off the dressings. She ripped off the surgical tape on his chest and Hunter really got big cuts from that. We had to go in the procedure room for that. It wasn't much fun for any of us.

At home he was a little cranky and sore, but by the following day he was fine. I did have trouble changing his band aid. Everytime I got near them he would scream. He is still bruised up really bad. There were five wounds. One on the groin and four on his chest. They had to go in through a vein on his chest as well because of his heart's different anatomy.

So now we just wait until August. How quickly the hospital routine came back to us. Ugh, just thinking about it makes me feel sick. Also I really missed Weston. A lot. I feel so bad that we have to leave him for so long. I hope our stay won't be long, but you never know. We had a roomate while we were there. He had been in the hospital a week since his Fontan and still had his chest tubes in.

Wednesday, June 07, 2006

New Updates

So all the updates from the past month.

Weston is walking really well and babbling more. He can color a picture, but mostly he still eats the crayons. He is getting 8 new teeth including his first molars. He has been very miserable and waking up more at night. He seems to like those icy pops, so I try to give him those to help. His hair is getting so long. He just got it cut 2 months ago and already is getting those little wings around his ears. I probably won't cut it again because he is so fair and won't wear a hat. Mabye all that hair will help. Weson loves to be outside ,and if the front door is open and he doesn't go out he cries. It has been raining lately and I can tell he wants out. His cars are still his favorite and building blocks. He also wants whatever Hunter has no matter what it is.

Hunter can write his name except he has trouble with the letter R. He knows how to put the letters in order from left to right and they are all pretty much on a straight line although not the same size. He is starting to "read" books back to me. Really he has memorized it, but he knows what to say on each page. He know his numbers 1 - 20, his upper and lower case alphabet, colors, and shapes. I've started working with him on letter sounds and some basic math. He is so smart. He loves to play games and puzzels. His new favorite thing outside is to swing on the big boy swing. He still loves Spongebob thanks to AJ's influence, but since we don't have cable anymore they have been watching a lot more PBS. He is also still my computer boy and loves his games.

Heart stuff

So this week we have just been sitting home. It has been miserable weather and I know the kids are getting cabin fever, but I don't want to expose them to any germs. Next week Hunter goes in for his heart catherization. We have an out patient day of testing and then the procedure and he stays overnight for observation. I'm getting to be a nervous wreck. Next week will tell us more of what to expect in August. I don't even want to think about it.

The Beach

Our next event was the beach on Memorial Day. The kids were again really good. My parents babysat them on Saturday night and C and I went out to eat. We both had Lobster. It was soooooooo good. We hadn't been out alone since March so it was nice to get away for a few hours. We were supposed to go to the movies on Sunday, but I knew the kids wouldn't sleep and my mother was tired so I felt too guilty. We ended up renting a movie which was fine.

The kids liked the beach. Hunter loved the sand, but was scared of the water although by Monday he would go in up to his ankels. It was freezing. AJ dove right in and his skin was red. Kids don't notice these things as much as adults. Weston loved the ocean and was sitting at the edge laughing as the waves came up.

We also went to Old Orchard and the kids liked the arcades. We just walked around and played some games.


Been way too buys lately. We went on our first real family vacation to Sesame Place. The kids were so good. It was nice going in off-season because there were no lines. Hunter was afraid of all the charactersand covered his eyes whenever he saw one. So no cute pictures with Hunter and Elmo, but we did get a nice one of me holding Weston with Bert and Ernie and another one with Grover. Hunter was also scared of all the rides and shows and parade. But... it is also a water park and they both loved that. It was a little cool, but they had there wetsuits and didn't seem to mind. Their favorite was a wave pool that came to about Hunter's knees in the deepest part. I liked the lazy river. There was also a bunch of fountains and little slides they liked. Overall it was a good time.

The Philadelphia Zoo was incredible, one of the best zoos I have been too. Hunter liked the birds. He especially liked feeding the birds nectar in the bird house. Weston seemed to enjoy looking at everything as well.

We stopped at Six Flags Safari on the way home and they weren't too impressed. I guess they had enough of being in the car. I was disapointed the monkeys aren't loose anymore. I know Hunter would have loved seeing a monkey slide down the windshield. C and I went about 4 years ago and they ripped a windshield wiper off my car. It was funny. C was upset though. He said enough of this #&$%#^ and hit the gas. I turned around to see monkeys flying off my car.

They both liked pool at the hotel especially Weston. He loves the water and has no fear. Hunter has always been more cautious, but once he got used to it he loved it.